Realities in Coping With Progressive Neuromuscular Diseases


Edited by Leon Charash, MD, et al.

In this book, 51 eminent authorities in the fields of neurology, nursing, psychology, social work, psychiatry, respiratory therapy, pastoral care and other related disciplines explore the critical role of the health care team in helping patients and their families learn to cope with the seemingly insurmountable problems that arise as a result of progressive—and invariably fatal—neuromuscular diseases, especially amyotrophic lateral sclerosis (ALS) and Duchenne muscular dystrophy (DMD).

Written for the caring professions, this book explains how coping mechanisms can be facilitated at each stage of the disease, beginning with the initial diagnosis and extending through terminal care. Among the many practical topics covered are the management of adolescents with DMD, home care for paralyzed respirator patients, the organization and function of family support groups, genetic counseling, the role of faith and the education of boys with DMD, to name a few.